CDC Plays Key Role in Health and Human
Rights Conference |
4/28/2005 |
Former
President Jimmy Carter, Nobel Laureate and
world-acclaimed human rights champion, gave
welcoming remarks at the Lessons Learned from Rights Based
Approaches to Health Conference held this
month in Atlanta, across the street from
CDC. Photo by Kathy
Nellis |
Dixie Snider,
Jr., MD, MPH, Chief Science Officer for CDC/ATSDR,
also provided welcoming remarks. ãHealth should be
considered a basic human right, not a privilege of
those who can afford it. If we donât look at
health as a basic human right, we are really off
the mark morally and in terms of what makes good
policy and even economic sense.ä Photo by Kathy
Nellis
| |
He survived the Killing Fields of Cambodia
as a young boy. But the torture and terror of the brutal civil
war and its bloody aftermath inspired CDC staffer Aun Lor to
work for a better world. This month, along with former
President Jimmy Carter, Lor was at the forefront of a
three-day conference promoting human rights and health.
Ten other dedicated health professionals
from CDC joined Lor on this mission, to help plan and organize
Lessons Learned
from Rights Based Approaches to Health. The event
was presented by The Institute of Human Rights at Emory
University, in collaboration with CDC, CARE USA, the human
rights office of the Carter Center, Doctors for Global Health,
and the World Health Organization (WHO). The conference
brought together colleagues from over 40 countries around the
world to discuss and debate critical issues regarding health
and human rights.
Aun Lor: Man with a
Mission
Lor knows firsthand what it is like to be
deprived of human rights, a tale he shares with his colleagues
at CDC.
ãAs a child of war, I lived through four
years under the murderous Khmer Rouge regime in Cambodia,ä
says Lor. ãI was unfortunate to have seen and experienced the
cruelty that humanity is capable of inflicting upon itself. I
escaped with my life but at the price of losing five members
of my family. I have experienced the hardship and uncertainty
of living in an overcrowded refugee camp. I have seen the
terror caused by the million of landmines that scattered
throughout Cambodia. I have experienced the social injustice
that is tearing apart the fabric of humanity. I share these
experiences with you because despite the injustice that I have
endured I believe that there is hope and that hope is
reflected by each one of you. Whatever roads we have taken to
this point, they have given us a common vision.
ãI would like to share with you an incident
in the early part of my life (age 7), during the Khmer Rouge
era, that has become a personal testament of hope. One day
when I returned from working in the fields to the village
where the Khmer Rouge had forced us to live, I was stopped by
two teenage soldiers. Unfortunately that day, I had with me
some potatoes that I had dug up in the forest. The soldiers
accused me of stealing those potatoes. They knew that those
were wild potatoes I had found in the woods, but they wanted
to kill me because they had found an excuse to do so.
Fortunately, I had arrived near the village and my mother
heard my crying and screaming. She pleaded with the two
soldiers to let me go. They dragged me by my arms, but my
mother grabbed hold of one of my legs and never let go. My
mother pleaded and begged for my life. She held on tight to me
because she knew they had no reason to kill her. How was my
mother able to convince them to let me go? They had been
dehumanized by the Khmer Rouge leaders. She appealed to their
sense of humanity, or whatever ounce of humanity they had left
in them. My mother told them that three of her sons and her
only daughter had already died, and that I was all she had
left. She told them about how devastated their own mothers
would be if they were themselves killed. You can say that my
mother had re-humanized them. She had put back the humanity
that had long been lost from them. And so they let me go. As I
look back at this incident over the years, I am reminded that
within every human being there is a sense of humanity, that no
matter how hopeless a situation may seem, there is hope. As
public health people we must hold onto that hope.ä |
President
Carter and Snider enjoy a moment of camaraderie as
they share their passion for human rights and
public health. Photo by Kathy
Nellis |
President
Carter shares stories from his boyhood, as well as
his experiences as the leader of the U.S. In the
front row, three CDC representatives listen. Six
people formed the Core Committee planning the
conference. Half of those were from CDC.
Photo by Kathy
Nellis |
CDCâs
representatives to the Core Committee include
(left to right) Audrey Lenhart, Aun Lor, and
Timothy Holtz, MD, MPH. Holtz and Lenhart were
also representing Doctors for Global
Health. Photo by
Kathy Nellis |
The Institute
of Human Rights at Emory University sponsored the
event, in collaboration with CDC, CARE USA, the
human rights office of the Carter Center, Doctors
for Global Health, and the World Health
Organization. Dabney Evans (center) is Executive
Director of the Emory University Institute of
Human Rights and Conference Planning Chair for the
event. Photo by
Kathy Nellis
| |
Today, Aun Lor is the Human Subjects
Contact and Ethics Lead person for OWCD and also the founder
and co-chair of the CDC Health and Human Rights Workgroup. He
was instrumental in CDCâs role in the Lessons Learned from Rights Based Approaches to
Health conference at Emory. He led the CDC effort in
organizing the conference as well as serving as a moderator
and a presenter. He was responsible for seeking official
sponsorship and CDC funding for the conference and led CDC
staff÷all volunteers÷in planning the conference.
He says it was one of the toughest things
in his public health career so far, but one of the most
rewarding. ãIt took a lot of convincing on my part to get CDC
buy-in and agreement to co-sponsor the conference.ä But the
work was worth it, he says. ãCDC is in a unique position to
contribute the field of health and human rights not only
because it is relevant to our work, but also because of our
strength in public health science to provide the evidence
needed that would link the health benefits of respecting,
protecting, and fulfilling human rights. After all, these are
our responsibilities as a government agency.ä
CDCâs History in Health
and Human Rights
CDC has long held a key role in the field,
Lor explains. ãThe modern movement in health and human rights
(HHR), in a sense, has its roots at the CDC. The late Jonathan
Mann, MD, MPH, who was foremost in promoting HHR in the
1980s and 1990s, was an EIS Officer at CDC from 1975-1977,
assigned to the New Mexico Department of Health. He returned
to CDC in 1984. This was a critical period in his life when
his personal philosophy on public health began to take shape
and human rights began to play a more prominent role in his
thinking.ä
Mann left CDC to lead the (then) WHO
Special Program on HIV/AIDS, which became UNAIDS. He was also
the first Director and first Professorial Chair of the first
academic center of health and human rights in the USA, the Francois-Xavier
Bagnoud Center for Health and Human Rights at Harvard. His
untimely death, in a plane crash, did not end those efforts.
His memory and contributions have been honored throughout the
world.
CDCâs Health and Human
Rights Workgroup
Various workgroups at CDC, including a 1997
NCHSTP group, the Behavioral and Social Science Working Group
and the Social Determinants of Health Working Group, have
tackled issues relating to health and human rights. Such
efforts and Lorâs commitment evolved into CDCâs present-day Health and Human
Rights Workgroup (HHRW).
Currently, there are over 130 HHRW members
representing every CIO and Coordinating Center at CDC. HHRW
members have diverse backgrounds, from secretarial staffs to
directors. HHRW membership is open to all CDC/ATSDR employees,
contractors, fellows, and trainees.
CDC Involvement in the
Conference: Core Committee
Of the 23 people on the conference planning
committee, 11 were from CDC. Three of those were Core
Committee Members, including Lor; Timothy Holtz, MD, MPH,
(CMDR, USPHS), Medical Officer, Division of TB Elimination;
and Audrey Lenhart, Guest Researcher, Division of Parasitic
Diseases.
Holtz says it was fun and exhilarating ãto
see the great amount of interest from outside. We had a small
number of CDC staff involved in planning on a regular basis,
but a considerable number attended the conference, so we were
very, very pleased. The best part was to see the leaders in
the field attend from across the country and the globe.ä
Holtz says it was valuable for CDC to be
part of the conference to show the public health community
that CDC is not solely a technical agency focusing only on
surveillance, epidemiology and statistics. ãMy feeling is that
there are many people in CDC who work here because they are
motivated by humanitarian concerns, and human rights reasons.
They feel that the right to health is a fundamental right, and
working in public health is the way to advocate and strive to
fulfill that right to everyone in our country, regardless of
sex, creed, race/ethnicity, religious affiliation or sexual
orientation.ä
Holtz continues, ãCDC brings technical
expertise and rigor in public health, something often lacking
in some health and human rights organizations. I think working
toward achieving better health for all, and fulfilling the WHO
goal of achieving the highest attainable standard of physical
and mental health is achieved through the work of lots of
different agencies.ä |
The conference
brought together colleagues from over 40 countries
around the world to discuss and debate critical
issues regarding health and human rights. Two CARE
representatives from Nepal, Chahana Singh and
Sabita Tuladhar, wear their colorful native dress
to the sessions. Photo by Kathy
Nellis
| |
ãHealth for all cannot be achieved until
all the fundamental freedoms and rights set forth in the
Universal Declaration of Human Rights are respected,ä adds
Holtz. ãA country can't respect civil rights but neglect
social rights, and expect its citizens to achieve the highest
attainable standard of health. The human rights-based approach
allows one to look at public health from a holistic
perspective. Human rights and health principles, as laid out
in multiple international declarations and covenants, are
tools to be used to achieve health for all.ä
On the Core Committee, Lenhart and Holtz
also represented Doctors for Global Health, a private,
not-for-profit organization whose mission is ãto improve
health and foster other human rights with those most in need
by accompanying communities, while educating and inspiring
others to action.ä
Holtzâs dual role at the conference was a
natural one, since he was a founding member and previous board
member of DGH. ãWe are a small NGO with community health and
human rights projects in multiple countries of Central America
and Africa. We believe strongly in the core human rights
principles, and in social justice for the marginalized and
underserved. For those interested in our work, there is more
information on our website.ä
Along with Core Committee Members Lor,
Lenhart and Holtz, eight other CDCers were Organizing
Committee Members: Sarah Boos, Camara Jones, Tony Johnson,
Suzanne Marks, Marilyn Metzler, Sarah Raskin, Jeremy Sobel,
and Basia Tomczyk.
Jimmy Carter, Dixie Snider
Open Conference
Nobel Laureate and former President Jimmy
Carter, a world-acclaimed human rights champion, provided
opening remarks. ãItâs a basic human right to have a chance
for good health care, decent health care. There is no reason
for a child to die of diarrhea, of malaria, of measles.ä Yet
they do. Hundreds of thousands of lives are lost each year,
because people lack the most basic health care. He urged
policy makers around the world to make a sustained commitment
to this cause. ãAll of us need to defend these rights, just as
much as we would defend the right to freedom of speech. Health
ought to be just as high a priority.ä
Dixie Snider, Jr., MD, MPH, Chief Science
Officer for CDC/ATSDR, also provided welcoming remarks. ãThe
focus on health and human rights is really important in terms
of what public health is all about,ä he said. CDC is actively
involved, its mission parallel to the international human
rights focus on promoting and protecting health. ãCDC is
dedicated to preventing and controlling disease, injury and
disability. Youâll see a greater focus on wellness, on the
personal, family, community and societal levels. In order to
be effective in achieving our mission we have to be attentive
to human rights.ä He said that while CDC is well-known for its
work in epidemiology and statistics, it is becoming more and
more involved in behavioral and social sciences too, in a
multi-disciplinary approach. |
Aun Lor
conducts a debriefing session following the
conference. Presenters and organizers called in to
provide comments and feedback on the event.
Photo by Kathy
Nellis
| |
Feedback from the
Organizing Committee: Dreams and Drama
It was ãempoweringä to be involved in
planning and participating in this event says Suzanne Marks,
MPH, MA, Epidemiologist, Division of TB Elimination. She hopes
this event can help inspire and motivate public health
workers. ãFormer President Carter, in his keynote address,
emphasized that there is a human right to health. His speech
was particularly poignant in calling for the participation of
all in helping to secure this right. There is a role for CDC
employees to play in respecting and helping ensure the
attainment of human rights of all our colleagues in the
workplace and in society.ä
ãPromoting health through human rights
promotion is integral to CDCâs mission,ä she says. ãThe
conference benefited middle- and senior-level program
managers, as well as community-level practitioners, from the
public, non-governmental and private sectors. The primary goal
of the conference was to share evidence-based models of rights
based approaches to health, with a special emphasis on case
studies and field examples.ä Conference topics included:
Childrenâs Health, Conflict & War, Economic Development
& Globalization, Education, HIV/AIDS, Humanitarian Aid,
Infectious Disease, Mental Health, Nutrition, Poverty &
Other Social Determinants of Health, Racism & Other
Systems of Injustice, Refugee & Internally Displaced
Populations, Reparations for Human Rights Abuses, Sexual &
Gender Minorities, Sexual & Reproductive Health, Violence,
Water & Sanitation.
For Sarah Raskin, ASPH Research Fellow on
Special Topics in Youth Violence Prevention, Division of
Violence Prevention, working on the event was exhausting and
exhilarating. ãI earned my MPH at Emoryâs Rollins School of
Public Health, where I worked as a student assistant for the
Institute of Human Rights, so maintaining (and expanding)
working relationships with Atlanta human rights colleagues has
been one of the most gratifying things (personally) about
working on this event. Itâs been challenging. Itâs deepened my
understanding of rights-based approaches to health. Itâs
pointed out some of the flaws and gaps as well as some of the
accomplishments of actualizing the concept.ä
ãIâm amazed÷literally, I marvel÷at the
committeeâs accomplishments in what weâve been able to pull
off on, essentially, volunteer participation,ä Raskin
continues. President Jimmy Carter, WHO Assistant
Director-General Kerstin Leitner, UN Special Rapporteur Paul
Hunt÷the participation of these astute leaders in the field
has been balanced by a whopping 350+ person registration that
represented over 40 countries. The conference planners were
able to secure about a quarter of a million dollars in Gates
Foundation grant money even though human rights is not among
Gates Foundationâs areas of funding. It all seems rather like
a dream at this moment.ä
She sees CDCâs participation as important
and valuable. ãHuman rights offer an opportunity for us to
remember that thereâs a person behind every story. Itâs
important to count things statistically, but itâs also
important to find the human impact÷as Jonathan Mann would say,
the Îvalueâ behind the p-value÷that can be elucidated.
Individuals are intuitively able to discuss the realization of
their human rights (or the violation of human rights). Surely
these stories count as much as do statistics and survey-based
outcomes. Some of us, like me, think that they may Îcountâ
even more.
ãAlso, I will say from a completely selfish
perspective, that the Friday night event÷a play called ÎWomen
and Warâ that is currently in development among a group of
Atlanta area artists÷was a particularly gratifying anecdotal
moment for me. Theatre was my first career, so to have
something like this bridge my two careers so nicely-and to
have it so well received by leaders in the field of Health and
Human Rights like Assistant Secretary-General Leitner, Steve
Marks from the FXB Center for Health and Human Rights at
Harvard, Lexi Bambas of Global Equity Gauge Alliance, Lanny
Smith of the Peopleâs Health Movement, Jennifer Kasper of
Doctors for Global Health, as well as members of our own
organization like Marilyn Metzler and Audrey Lenhart÷well,
that was spectacular.ä
Basia Tomczyk, RN, MS, DrPH, International
Emergency and Refugee Health Branch, helped organize the
round-table on results from an emergency nutrition and
mortality survey among Sudanese refugees in Chad. She enjoyed
helping with the conference, even in the early stages. ãIt was
an interesting process particularly early on in the planning
stage since we didnât know at that time who would all be
involved but we had an idea of who we wanted.ä
She echoes her colleagues in emphasizing
the importance of CDCâs participation. ãCDC played a major
role both in the opening and closing sessions as well as
helping to frame the public health issues related to HR. A
health and human rights conference like this one can assist in
raising awareness about and the inequalities related to HR in
health that need to be addressed as the root causes of
disparities, etc. Having its own conference really spotlighted
the issues and brought a lot of folks together who might not
have a chance to focus on this issue. I encourage that we as
health practitioners always consider the issue as HR in our
work since health is a basic human right and most risks
associated with disease can be linked to human rights.ä
The Call for Human
Rights
The call for human rights is a human
connection, explained Peter Bell, President of CARE. ãItâs not
that we are our brotherâs keeper, itâs that we are our
brotherâs brother, our sisterâs sister.ä
Thereâs a simple principle behind the
conference, added Dixie Snider. ãHealth should be considered a
basic human right, not a privilege of those who can afford it.
If we donât look at health as a basic human right, we are
really off the mark morally and in terms of what makes good
policy and even economic sense. Itâs an idea that should have
appeal across every political spectrum, because unless people
have their health, they will not be able to reach their full
personal potential.ä
Many people come to CDC with value systems
in line with health and human rights, he says. ãThe conference
is just another reminder of how that makes sense, whether you
approach it from a humanitarian perspective or an economic or
political one.ä
The Health and Human Rights Workgroup helps
keep such ideals in front of CDC, says Snider. ãWe want to
remember as we go into other cities and communities, to
provide equity and give people rights to the public health
interventions we have to offer, and as we do our research, to
respects the rights of people.ä
The conference will be publishing a ãnext
stepsä agenda as part of the conference report. The evaluation
and reunion of some key stakeholders will inform this effort.
This conference is poised, via such outcomes, to identify
critical needs and gaps, as well as best practices and models,
to propel the field forward, says Raskin. ãWe take very
seriously the potential of this conference to impact the
future of public health in a meta-sort of way.ä
A Challenge from Aun
Lor
ãLet us not forget that health was never
just the absence of infirmity, but that health encompasses the
physical as well as the spiritual and mental well-being of an
individual,ä says Lor. ãWe recognize the intrinsic link
between health and social justice, health and the environment,
and health and human rights. We know that health is not just a
privilege for those who can afford it, but should be regarded
as a basic human right, that everyone should be entitled to
better health. We know that raising the standard of living of
a community will better improve the health of the people than
giving them medication when they become ill. We know that
making water safer can eliminate many diseases inflicting
millions of people worldwide. We have the knowledge and
ability to prevent the unnecessary suffering of millions of
people, but still millions are suffering and dying from these
preventable causes. There are many obstacles we have yet to
overcome.
ãDespite these obstacles, hope is not lost.
We are guided by our common vision as we prepare our courage
to face the challenges ahead. We seldom credit ourselves, but
we are the people who make the world a better place. Let us
remember our vision and take upon ourselves to become the
ambassadors of hope, the educators, and leaders. Let us do our
part in making the world a better place.ä
This Inside
Story by CDC Connects
reporter Kathy Nellis. |
| | |